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MACE/Mitrofanoff Day 6- NG Tube Removal

Anna had a bad night last night.  She had lots of gas pains and finally started pooping.  The poop looked like the goo that was coming out of her stomach- which makes sense given the fact she hasn’t eaten anything and was cleaned out for surgery.  However, the poop and gas are a good thing in the long run.  Because her bowels are working, we were able to remove the ng tube this morning around... read more

MACE/Mitrofanoff Day 5- NG Tube Clamp

Today was not very monumental.  We had two significant events.  Event number one was that Anna’s suprapubic catheter came untaped from her leg.  Nothing bad happened, but Dr. Perez was very serious about making sure that it wouldn’t happen again.  If it got pulled out in some way, it would be a very bad thing.  He put lots of extra tape on it- now Anna looks like she also had surgery on... read more

MACE/Mitrofanoff Day 4

Last night Brad was able to get Anna up and into a recliner.  He pushed her around the hall a little bit, but it was a brief trip.  This morning at 10:30 she was placed in one of those little red wagons that has a pole attached for hanging all your monitors and IV stuff.  We took a trip down the hall and read a book in the playroom.  After about 15 minutes, she was ready to go back.  Anna’s... read more

MACE/Mitrofanoff Day 3- TPN

The day after surgery has been mostly characterized by sleeping with periodic wakefulness.  Anna slept/rested until her morphine wore off.  Then she was wakeful until the next time she was able to receive the morphine again.  Generally, by the time the two hours were up, she was requesting more pain meds because she had been coughing, which made her tummy sore.  The ng tube continued to suck out bloody... read more

MACE/Mitrofanoff Day 2- Surgery

Anna slept well last night.  The team came in around 6:30 to get her ready to go down to pre-op.  Anna was ready to do the surgery, but naturally wanted us to stay with her until the very last moment.  I was able to lay on the bed with her as she was wheeled down the hall.  Since it’s New Year’s Day, staffing is a little low, so we were taken back further into pre-op than usual.  Most of... read more
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