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MACE/Mitrofanoff Day 9- Holding Pattern

Today was sporadically eventful.  The day started off with the permanent removal of TPN.  Hooray.  We also had our first clog in the suprapubic.  Boo.  As we have been warned, that was a painful...
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MACE/Mitrofanoff Day 8- Solid Foods

For those of you who know that our family has special dietary needs, I will clarify that Anna, specifically, does not have any food intolerances that we know of.  So, although our household is gluten,...
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MACE/Mitrofanoff Day 7- Thick Liquids

Today, Anna graduated from clears to thicker liquids.  She’s not as excited about this as one might imagine.  For lunch, they sent her a yummy looking strawberry smoothie from...
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MACE/Mitrofanoff Day 6- NG Tube Removal

Anna had a bad night last night.  She had lots of gas pains and finally started pooping.  The poop looked like the goo that was coming out of her stomach- which makes sense given the fact she...
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MACE/Mitrofanoff Day 5- NG Tube Clamp

Today was not very monumental.  We had two significant events.  Event number one was that Anna’s suprapubic catheter came untaped from her leg.  Nothing bad happened, but Dr. Perez was very...
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